Friday, March 19, 2010

Better and better!!!

Everything is going so much better than we ever expected!!! We finally have Luke in our room with us - just us! It's perfect. It was a long afternoon waiting but they were trying to finish up all the testing on him in the NICU. This poor little guy has had a LOT of pin pricks but he's handling it like a champ!
Our neurologist did a final check up this morning and still had nothing important to note - yeah! Someone at Children's set up our initial appointment with him in June when we'll also start meeting with OT and PT. They also set up his initial pediatrician appointment next week. Someone else is getting us set up with First Steps which is essentially, from what we understand, a service that comes to your house and decides what special needs your child has and does treatments such as OT and PT and other evaluations. I cannot believe how much help we have had. In our first meeting with the neurologist, neonatolgist and our nurse they kept stressing that we were not alone in this. In my mind I was thinking that it was easy for them to say that but they don't go home with us!! Now, I totally see what they mean. The support we have received here at Barnes & Children's has been absolutely amazing! I NEVER dreamed they would go out of their way to help us cover ALL of our bases and really support us. It has made this week so easy and we are so comforted.
He still hasn't really met his brother yet for more than a minute - which might be safer for Luke!! Hopefully that will happen tomorrow either here at the hospital or at home. We're not sure when we're being released yet.
Thanks for all the prayers and kind words. Keep it up - it's obviously working!! We are excited and looking forward to our first sleepless night with our little guy!!!

4 comments:

  1. Such great news. I'm sure you will find First Steps very supportive (I assume that is your EI system in MO). You are not alone in this. You have many professionals to help you... and don't forget all of us! Now you have all the typical new baby stuff to deal with: sleepless nights, crying, many poopy diapers-- but I am sure you can handle that. You have handled everything else with amazing ease, grace, and confidence. You are wonderful, Mel. Good luck and keep us updated.

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  2. Mel,
    This post is making me cry!! I am so happy that all of you (well, except for Ben) are together. You have been such an inspiration over the past few weeks-you and Dan have been dealt some pretty rough things-but you have handled everything with AMAZING grace and courage. Have fun taking Luke home and keep him safe from Ben!!

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  3. my nephew rocks! of course he does! and so do you. awesome post... couldn't be any better, and isn't that something to celebrate. especially before the sleep deprivation kicks in. ha! see you soon... xoxox

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  4. I am so thrilled to read this post! I can only imagine how thrilled you and Dan must be tonight! My prayers continue for the Rush family and I look forward to more great posts of awesome news.
    In Him,
    Vonna

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