Answers...sort of, not really.

Just a quick update - first of all, thanks. Thanks for all the kind words that came our way today. 
We had a great day - Luke woke up in a great mood and had a perfectly uneventful day.  It was easier than I thought it would be just to get back into our routine.
I did hear from our neurologist about the EEG from yesterday.  The EEG came back normal which means at the time the EEG was done there was no seizure activity detected in his brain.  At that point, I thought it meant that maybe he didn't have a seizure but he said that from what we described he's fairly certain he did.  All the EEG results did was confirm our decision not to go ahead and start anti-seizure medication for Luke right now.  Dr. Smyser said that seeing the results made him comfortable with NOT starting Luke on anti-seizure meds.  Where it leaves us is exactly where we were when we woke up yesterday morning - due to Luke's brain malformation he is more prone to seizures.  Where, when, how often those will occur - we still have NO answers.  He could have another one in 5 minutes.  He also may not ever have another one again.  So we're in exactly the same spot we were when we brought him home from the hospital - except we've dealt with and made it through one seizure. 
We're going to go ahead and read up on different seizure medications so that we're prepared if it happens again.  Dr. Smyser said that if he has a second seizure then we'd probably want to go ahead and start him on anti-seizure medication.  At least this way we'll have time when we're a little calmer to make some decisions that will best suit Luke.
Dr. Smyser knows a doctor in Seattle who works with this doctor who is 'THE' doctor to go to if your child has PMG.  He has shown this doctor Luke's MRI's and also talked to him last night about his seizure to see if there is anything else we should be doing, any tests we should be having Luke go through.  They are going to include Luke  in a research study.  All we have to do is have Luke's blood drawn and sent to Seattle.  We have to wait for them to contact us to get the ball rolling.  It sounds like with ongoing research and comparing Luke to other children who have similar diagnosis they might be able to tell us more about what caused Luke's PMG and maybe more of what we would expect. 
Again - thanks for the kind words today.  It means a lot to us.