The Waiting Game...continued.

So far Luke has been exceeding all of our expectations.  He has been 'beating' this brain malformation and doing pretty much everything a typically developing child should do.  When we first brought him home, because of the various seizure warnings we were given, I was often worried about odd movements he would make or when he was sleeping too much or if he was acting 'funny'.  You know, I was worrying about all the normal things babies do anyway!!  I was sure, just positive, that he was going to have a seizure and I would miss it. 
Time went on and I eased up.  I  stopped worrying about it constantly.  The thought of him having a seizure never left my mind but I eased up and relaxed. 
But you don't.  You don't really relax and you don't 'miss' it.  And now, sadly, we know. 
(Let me preface what I'm about to write by telling you that Luke is totally back to his normal, happy self at this point in time!!)
This morning, Dan found Luke laying face down in the family room.  He was fairly limp and not really responding to him.  Luke was NOT unconscious.  Dan brought him upstairs to me and you could tell he was awake but he wasn't able to keep his head up and he wasn't looking at us.  We knew something was wrong.  He kind of came to and became responsive to us.  We were both really upset.  I decided to call our neurologist office.  We left a message for the nurse to call us back.  In the meantime, Luke was sitting up in Ben's room and kind of trying to play.  He was falling over a little and having a hard time crawling.  Then he threw up...for the first time.  While I was holding him so Dan could clean up, his eyes were focused to the right and he was pretty limp again.  While I was trying to soothe him and get his attention.  He threw up again. And again. 
All of this probably happened in a matter of 5-10 minutes.  The nurse from our neuro's office called back.  I described what had happened and she consulted with Dr. Smyser.  They decided that it did sound like a seizure and told us to come to Children's ER. Luckily for me Dan was off this week and also my mother in law was available to come get Ben.  As we were getting ready to leave, Luke seemed very tired but way more focused.  He fell asleep for a little while on the way to the hospital.
We were at Children's most of the day.  We were answering the same set of questions for numerous people...What happened?  How long was it?  Which way were his eyes looking?  Which way was his head facing?  How long before he responded to you?  Has he been ill? 
We saw our neurologist and the neurologist on call.  They decided to do some blood work to rule out the possibility that maybe it was all a fluke and he had a stomach bug or something.  All his bloodwork came back normal.

They also decided to do an EEG.  They said that it sounded like the seizures were firing from the left side of his brain because he was rolling his eyes to the right and he seemed to be resting his head towards the right when Dan found him.  They had to glue 26 leads on his poor head.  He did not care for that situation!  But then, luckily, he fell asleep for most of it.  We'll get the results of the EEG in 2 days. 

Our neuro said it sounded like he had a 'cluster' of seizures because they said it sounded like he had 2 seperate seizures in the time the whole 'episode' happened. 

And now we wait.  Again.  Still.  We wait.  Obviously no one can say when or if he'll have another seizure.  Dr. Smyser said that we could opt to go ahead and start medication but we want to give it a little time and see what happens.  He's going to send us some literature about different anti-seizure medications so we can decide what looks *best* (ha) if a next step has to be taken.  It kind of sounds like with his guidance, we can choose the one with the most optimal side effects....If that even makes sense. 
He didn't have any more episodes all day. By the time we got home and fed him something more than animal crackers and apple juice he was pretty much totally back to his own self.  He was happy and sassy and ready to play. 
Now Luke's sleeping and I wonder how we sleep easily tonight (or the next night, or the next....).  We're not the first parents whose child has had a seizure (duh).  But it is our first seizure with Luke.  And I know we'll sleep - we're both wiped out today.  But how do we sleep easily?  When Dan was finished putting him down for the night, my heart was just racing.  Dan's already upstairs checking on him right now.  Not that it will really tell us anything just by looking at him - but we'll feel better. 
We are trying to remember that he's still doing sooo well.  We are amazed and proud of him everyday.  We'll see where this new road takes us....Thanks in advance for your continued prayers and positive thoughts.