|Woah! Look at those arms!!|
He's also beginning to take bites of food. He is able to bite his food and chew but since he has decreased muscle tone in his mouth/jaw area, taking bites out of food is difficult for him. We still cut up all of his food into bite sized pieces. But lately he has been taking bites of things like quesidillas and peanut butter sandwiches successfully. He still tends to try to stuff the whole thing in his mouth but with verbal reminders he is able to take bites. This may not seem like a big deal but it is HUGE.
This summer, Luke is taking a semi-break. He is not going to go to summer school. We are increasing PT & speech to once a week and continuing with Equine Assisted Therapy. Other than that...we're hanging out! In the fall, he'll be in a class at the same school as Ben with 6 typically developing children and 6 children with IEPs. I had the opportunity to meet the teacher's aides in the classroom and it seems like it will be a good fit for him.
We had to restart our seizure-free countdown again and are back at four weeks seizure free yesterday. He has started a new medicine called Lamictal. We're increasing his dosage very slowly because of some of the possible side effects. He should be at full dosage in about 6 weeks. At that point we'll see how he's doing. I believe if he continues to do well with it and he remains seizure free then we'll start talking about reducing his other medicine, Keppra. He's reacting very well to the new med and I'm hopeful that this will do the trick for a good, long while.
We're also walking in an epilepsy walk in June benefiting the Epilepsy Foundation of Missouri and Kansas. If anyone is around and would like to join, here is the website: http://www.firstgiving.com/efmk/SeizeTheDaySTL. It starts at (eek!) 7:30 a.m. But walking for Lukie is worth getting up at the crack of dawn for, right? While we are, of course, walking for Luke, I'm constantly reminded as I see other families truly struggling with seizure control how 'lucky' we are that Luke's seizures are largely controlled. Although we're trying to find our magic medicine mix right
now, I feel good about getting there and being seizure free for a good, long time again. So while we're walking for our guy, we have a lot of other kiddos/families that will be in our hearts, too.
|We had friends come to visit. Abby taught Luke how|
to spell her whole family's names. He is starting to spell a lot
of words and even starting to recognize some words!!! I think
he also had (has) a HUGE crush on Abby...
He continues to be totally enamored by his big brother. Ben teaches him things day in and day out without even trying....such as after you let out a huge belch, you yell 'Uh-Oh McBurpsio's' while you're laughing hysterically *sigh*. I'll take it....!!! Luke will try anything Ben does (except eating vegetables!) and I truly believe Ben's influence really pushes Luke to try harder.
I hope everyone is enjoying their summer! Thanks for checking up on Luke!
|Three sweet superheroes - Avery, Ben & Luke!!! |