I'm flying with the boys by myself and Dan is coming out to meet us Friday. Luke has come down with a nasty ear infection and cold and Ben woke up with a nasty cold this morning....thank goodness my sister in law gave me some drink tickets for Southwest!!! Thanks, Amy!! It could be a long 4 hours! It's just our luck that they've been completely healthy for a long time and then within 24 hours of a long flight....all *#@& breaks loose!!
Speaking of Luke's ear infection, we just went back to the ENT about two weeks ago. I wanted to have Luke's tube checked as well as an unusual bump on his ear. Our ENT has never seen a growth like that before (of course!) so he's going to biopsy it. Originally he was going to go ahead and remove Luke's remaining tube because he has had no problems with it in quite awhile but Luke had different ideas! I sent pictures to Dr. Mirzaa and she said that some children with a similar overgrowth syndrome, M-CM or MCAP, have lipomas. When I mentioned that to our ENT he was somewhat doubtful because Luke's lump is very hard and I think lipomas tend to be fatty...we'll find out soon. That biopsy surgery is scheduled for July 25th.
|Weird ear thing...we'll see!!!|
We were able to take part in an Epilepsy Walk benefiting the Epilepsy Foundation of Missouri and Kansas. Although it was early it was a lot of fun!
Remember last year when I told you about PMGAawareness.org? The last weekend in June was the first PMGA Family Convention. Two of the board members in Jacksonville who were the ones who originally started the website/organization pulled together a long weekend of speakers, therapists, education and fellowship. Some friends of ours generously gave us some airline miles so I could go. I was having a hard time deciding to spend the money on myself. We decided not to go as a family since we already had our Seattle trip planned. I am so glad I was able to go because it was simply amazing. I was able to meet many families who I'd only known online. I thought we'd spend a lot of time talking about PMG and therapy and doctors...and we did. But we also spent time talking about life and ourselves and family...I am not a late night girl but we were up a LOT and I loved every minute of it. I was able to meet a few moms that I have been talking to either on the phone or through Facebook or e-mail for awhile now. I thought it might be awkward to meet in person but I can honestly say that it didn't feel strange at all. I feel like I've known most of them my entire life. While I wish we didn't have the common tie that we do....I'm so lucky to have all of these people in my life.
OK, wish this momma luck on a plane with two under the weather boys! Hope you're all enjoying your summer!