|Chowing on cupcakes!|
Today I picked him up from daycare I was told he took off his pants outside! And he's been telling everyone that there is a 'hotdog in his booty butt'! What!? He's turning into such a nut.
It's really nice to have places where we feel comfortable taking him during the last few stressful months. I know that both of his schools are well equipped to handle a seizure if it happens to occur. We are fortunate because the only babysitters we use outside of family are two women who have known Ben and Luke for awhile because they are teachers at our daycare. They know him really well and I feel comfortable knowing they'd recognize behaviors that were out of the ordinary. He has quite a team of people looking out for him!
Speaking of teams, I also wanted to update about the Epilepsy Walk. We are SO fortunate because due to the love our family, friends and even strangers, we have already surpassed our goal. The walk isn't until the middle of June! I am overwhelmed and feel so blessed. If you are planning on walking with us, don't forget to join our team before May 26th so you can get a Seize the Day t-shirt. I haven't been able to personally thank everyone who has shared/donated/joined yet but I will. In the meantime, please know how much it means to us. I have big hopes of funding going to things like better medicines to control epilepsy and seizure detection devices that will detect the kind of seizures Luke has. Together I feel like we're doing something really important for Luke and many others and that is an amazing feeling. So thank you.