We had our meeting with our First Steps Coordinator, the OT and PT to write Luke's IFSP (Individualized Family Service Plan). Our coordinator asked me what our goals were for Luke for the next year and really for his lifetime. I somehow managed to cap it into a few minutes but really, think about it - goals for a lifetime? I want him to walk. I want him to talk. I want him to laugh and play with his brother. I want them to get in trouble together. I want him to drive and do well in school. I want him to climb on top of the furniture and counters and ignore me when I tell him to get off. I could've gone on and on. Then we narrowed it down and focused on major milestones as his goals for the next year - we'll work on holding his head up, sitting up, rolling over, crawling, pulling up, walking, eating solid foods, etc. With any luck he'll meet all of those goals. The OT and PT will continue to see him on opposite weeks. So we'll have both but every other week. They talked about what they've observed and what they will do within the next year to help Luke meet his goals.
Still no signs of seizures from what we can tell. They may never happen (fingers crossed!). I wish that was something the doctors could give us a 'yes' or 'no' on. Yes he will have seizures or No he won't. I hate worrying about every little movement but it's getting easier.
He's doing good with his big brother - or I guess that is the other way around. Ben seems to mostly like Luke except when he cries - then he gets a loud 'Quiet Luke!' from his big brother. Ahhh....brotherly love!
Thanks for checking in on us! We'll continue to post updates but hopefully we won't have a lot to say very often!!!
PS! I think I figured out how to add e-mail subscription!! Look on the top right - I hope it works!!