Thursday, February 27, 2014

Yay!

This kid is unbelievably tough and brave!!!  He has been such a champ with all this stuff on his head and being confined to one room.  
So far, so good.  The EEG so far looks really good.  He hasn't had any big events that we were worried about so we're still not sure what that was. However he's been chatty,  happy,  silly. ... Back to his normal self.  The doctors stressed repeatedly that this is just a glimpse of time and just because it looks good right now it doesn't mean that it will look like that in a few days.  I get that.  I do.  But what the EEG  and Luke's behavior mean to me right now - at this moment in time - is that he seems really, really good for the first time in a long time.  I'll take it! I know this is something he'll always struggle with but right now our happy,  sassy boy has made a strong reappearance and that is great! 
We're staying one more night to be on the safe side which is fine since we're already here.  We'll both be happy to get home tomorrow. We'll be praying that this new medicine continues to do the trick for a long time! 
Lots of love from us!




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