Everything is going so, so well! We met with the neurologist & pediatrician today. The MRI did show that it is indeed the bilateral frotoparietl polymicrogyria. We were expecting that news. What the MRI also showed was that there was no other damage in his brain area. It does not look like it affects the back part of his brain or the inner parts. Also, his brain stem appears to be normal - as I was researching I saw several indications that a lot of PMG kids have smaller brain stems. This doesn't change his dianosis and the challenges that lie ahead but it feels so good that he's been given such a strong and healthy start. It is comforting to know that other areas aren't affected and we continue to remind ourselves that while we never wanted to hear this news - sooner than later is better so we can start supporting him.
He continues to show NOOOO signs of seizures and he is eating very, very well!! Everyone says he looks like a 3 month old and as I hold him I cannot believe this huge, perfect human being came out of my tummy YESTERDAY!!!
BEST PART OF ALL!!!! Luke is being released from the NICU tomorrow to come stay with us!!! NOT in the NICU at Barnes but WITH US!! We'll have to move rooms but that is OK! We are both really excited.
You have no idea how comforting it has been for us to read all of your words of support & love both with the comments and e-mails we've been getting. We are really feeling lucky to have such wonderful family & friends in our lives!!
Love, Mel
Yippee!! I am so glad to hear that. The normal brain stem is really good news. And being released from the NICU... at this point you can't hope for better news. Sending happy thoughts and prayers your way. Hope you are doing well, too.
ReplyDeleteHow wonderful! I am so happy to hear that you are getting such uplifting and comforting news from the doctors! So happy to hear he is eating well and you are all doing so great.
ReplyDeleteLuke is BEAUTIFUL!!! I am so happy to hear that he is coming to stay with you! You guys are in my thoughts and prayers. You look great, by the way!! Best wishes to you all.
ReplyDeleteWhat troopers you all are! So happy that "lucky Luke" is doing so well and is able to be with you. He is a handsome young fellow! He is blessed to have such wonderful parents.
ReplyDeleteMel, Dan and Ben--Congratulations on your new family member! Each of you will have new and challenging experiences ahead. A good friend of mine once said "after love, what else is there?" I'm so glad the Rush family understands this. Enjoy having Luke at home. Ben, you are going to have to live with alot of "he looks so much like his big brother!!"
ReplyDeleteMel, I was surprised that you have already had Luke. I am happy for the news you have so far. Sounds like, and looks like he is a hefty little guy. I am continuing to pray daily for you and him. Take care of yourself and (big) Luke.
ReplyDeleteLarry Mayton